SMS Awareness 2026

This November, we’re bringing back our Shining Mega Stars campaign to celebrate the wonderful individuals at the heart of our community and raise awareness of Smith-Magenis syndrome. We’re inviting families to share a favourite photo or short video of their person with SMS, together with a few words about what makes them shine. Submissions will be shared throughout November as we build towards Global Smith-Magenis Syndrome Awareness Day on 17 November. Complete the short form below to take part and help us show the personalities, strengths and individuality of people living with SMS.