This survey is being conducted by the Smith-Magenis Syndrome (SMS) Foundation UK with the purpose of improving our understanding of COVID-19 in people with Smith-Magenis Syndrome across the world. After collating the results and appropriate consultation with our scientific and clinical advisers, we intend to publish a summary of our findings. This is a piece of work being undertaken with the intent to better support individuals within the community and is not a formal piece of academic research.
The survey will take less than 10 minutes to complete and the information provided allows for complete anonymity. For information about the handling of data by the SMS Foundation UK please visit https://smith-magenis.org/privacy-policy/. Please only complete this survey if the person you care for, with SMS, has had COVID-19 or experienced symptoms and COVID-19 has been suspected.
Please answer the following questions in respect of the person you care for (or yourself) with SMS. If you care for more than one person with SMS, please complete one survey per person.
The closing date for this survey is 28th February 2021.
If you have any questions or queries about the completion of this survey, please contact:
Nigel Over
Chief Executive Officer
The Smith-Magenis Syndrome (SMS) Foundation UK
12 Bankton Brae, Murieston, Livingston, EH54 9LA
nigel@smith-magenis.co.uk
Tel: 01506 429970 Mob: 07803 605739
or
Natasha Craven
Research and Administrative Assistant
The Smith-Magenis Syndrome (SMS) Foundation UK
natasha@smith-magenis.co.uk
Mob: 07748 708 788
*If you are filling in the PDF form, please can you email your survey back to us at info@smith-magenis.co.uk.
This week’s community Zoom drop-in chat with Jayne Dainty of SOS Care Services