Get Involved
Whether you are running a marathon, organising a fundraising event, or want to become a regular giver we have a selection of ideas and resources to help get you going.
Your support matters
Your help enables us to provide information, services, and support to families who feel isolated and overwhelmed. See how.
Give to us
Fundraise for us
Awareness & support
Lockdown has come with its own pressures and the SMS Foundation has been brilliant in providing tailored advice for any behavioral changes and methods to help calm situations. Alongside the tricycle donation, they’ve truly been a savior over the last few months!
Mum of nine-year-old boy with SMS, Read Caden’s story
Get involved – events
Current fundraising & challenge events
London Landmarks Half Marathon 2023
Sunday 2nd April 2023
Great North Run 2022
Sunday 11th September 2022
Local Landmarks 10k
Sunday 20th February 2022
(Past event – now closed)
Family events
Want to meet other SMS families who understand and just get it?
We help fund and arrange community events so that our families can connect with others. From small gatherings over a cuppa to larger-scale formal events.
SMS Family Meet-up in Lancashire
Saturday 16th July 2022
SMS Conference 2022
Past event (now closed)
Audley End Miniature Railway
Past event (now closed)
a donation of…
£30
Could help answer another urgent call to our helpline from a newly diagnosed family desperately seeking support from someone with lived experience of SMS.
SMS awareness
School class/assembly presentation
Want to raise awareness of SMS in your school?
This presentation explains the syndrome in a simple and easy-to-digest way that is ideal for use in a primary school classroom or assembly.
a donation of…
£75
Could help us provide local in-person support sessions to families in need of help navigating the challenges of raising a child with SMS.
Why your support matters
A donation to the Smith-Magenis Syndrome (SMS) Foundation UK helps us to improve the quality of life of a person living with SMS through our Small Grants Programme.
a donation of…
£100
Could help provide accessible online guides for SMS caregivers and professionals, giving access to vital information and support when this is needed.
Fundraising Resources
Planning a fundraising event? To help support your event the SMS Foundation can provide you with a fundraising pack which includes a selection of documents designed to help you raise money and awareness including a sponsorship form, press release template, donations form and template letter for prizes and donations.
Other resources to help raise awareness for your event including t-shirt(s), baseball cap(s), stickers and balloons can be sourced, please get in touch to discuss what you need for your event.
If you wish to download the documents available in our fundraising packs please use the following links below.