Connecting Families, Raising Awareness, Building Futures
Help us support a fulfilling future for everyone living with Smith-Magenis syndrome
We want to bring more families together, provide education and awareness training, and sponsor research into SMS. But we can’t do it without your help.
We are the Smith-Magenis Syndrome (SMS) Foundation UK, and we support families who have children and adults with SMS.
Every person with Smith-Magenis Syndrome shall have a fulfilling life within a supportive and understanding community.
Never feel isolated or alone. Call our helpline: 0300 101 0034, or Contact Us
Please note: This is an answerphone service that will alert us as soon as a message is left. A trustee will call you back as soon as possible – we aim to respond to messages within 24 hours.
Please share your EHCP/CSPs with us. We want to draw out provisions and good practice to help every individual with SMS prosper in their education. Our recent survey on education produced some …
We kick off our first summer 2022 intern project with Susan Over, who is exploring residential living options for adults with SMS. The survey (see link below) aims to discover where adults with SMS …
Spotlight on SMS
A series of articles exploring common health symptoms and general wellbeing within Smith-Magenis syndrome.
Through the Keele University Internship Programme, Liam joined the SMS Foundation for the summer to …
What is Cortical Visual Impairment (CVI)? Cortical visual impairment (CVI) is a brain-based visual …
Spotlight on Sleep A family’s life can easily turn into a nightmare when one member has a …