Our Spring 2020 Newsletter
Connecting Families | Raising Awareness | Building Futures Welcome to our …
Emergency hospital documents for download
Going into hospital is never an easy time for anyone, but for someone with …
The Smith-Magenis Syndrome (SMS) Foundation UK introduces Helen Hargrave as our Fundraising Manager
Having worked in the charity sector since 2010, Helen has spent the past …
Information and Communications Manager Announced for Smith-Magenis Syndrome (SMS) Foundation UK
The Smith-Magenis Syndrome (SMS) Foundation UK introduces Leeann Stevenson …
CEO Announced for The Smith-Magenis Syndrome (SMS) Foundation UK
For over 35 years, Nigel Over has been involved in the running of, or …
Charity Commission approval for CIO
Following the vote by members in favour of converting the Foundation from …
Ciara Harvie becomes Charity Ambassador For SMS Foundation
Sensational Mezzo-Soprano Ciara Harvie becomes charity ambassador for the …
Smith-Magenis Syndrome Foundation UK – EGM Notice
The Trustees of the Smith-Magenis Syndrome (SMS) Foundation UK are calling …
Our 2020 Vision
Every person with Smith-Magenis Syndrome shall have a fulfilling life …
Melatonin Application Rejected by SMC
The Scottish Medicines Consortium (SMC) has rejected the application to …
Outline 2019 Conference Schedule
We are pleased to publish our outline schedule for the 2019 conference. …
Sleep Safely – Your Help Needed!
The SMS UK Foundation has commissioned a project to understand the …
Dates for 2019 Conference Announced
The 2019 SMS Foundation UK Conference Friday 3rd May – Monday 6th May …
Team of SMS Dads Complete 3 Peaks Challenge
On 23rd August, a group of 19 Dads that have children with Smith-Magenis …
Don’t get cut off
The General Data Protection Regulations, which are a government law, are …
SMS Foundation 2018 AGM and Members Event
Saturday 5th May 2018 Conkers – Award winning attraction at the heart …
World SMS Awareness Day and our 25th Anniversary
It’s World Smith-Magenis Syndrome Awareness Day, and the SMS …
Bright Stars Shining a Light – A Video about living with SMS
The final film in our series! Bright Stars Shining a Light is a video about …
Sunlight & Nightshade – A Video About SMS Behaviours
Sunlight & Nightshade is a video about some of the behaviours …
Sweet Dreams & Survival – A Video about SMS Sleep
We are delighted to release the third film in our series. Sweet Dreams …
That Defining Moment – A Video about Diagnosis
In the lead up to the international SMS awareness day (17th November), …
A huge “Thank You” to our Jeans for Genes fundraisers
We would like to say a huge “Thank You” to all those that …
Mum speaks of son’s genetic disorder for Jeans for Genes Day
Joanne Martland and her son Louie are currently featuring in local …
The Marlborough family of Lily Stevenson have been chosen to front a campaign for national charity Jeans for Genes
A Wiltshire family with a child with a rare genetic disorder have been …