Melatonin Application Rejected by SMC
The Scottish Medicines Consortium (SMC) has rejected the application to recommend prolonged-release …
Outline 2019 Conference Schedule
We are pleased to publish our outline schedule for the 2019 conference. Further details of the …
Sleep Safely – Your Help Needed!
The SMS UK Foundation has commissioned a project to understand the requirements for sleeping safely …
Dates for 2019 Conference Announced
The 2019 SMS Foundation UK Conference Friday 3rd May – Monday 6th May Following the successes of our …
Team of SMS Dads Complete 3 Peaks Challenge
On 23rd August, a group of 19 Dads that have children with Smith-Magenis syndrome completed the epic …
Don’t get cut off
The General Data Protection Regulations, which are a government law, are changing on 25th May 2018 …
SMS Foundation 2018 AGM and Members Event
Saturday 5th May 2018 Conkers – Award winning attraction at the heart of the National Forest …
World SMS Awareness Day and our 25th Anniversary
It’s World Smith-Magenis Syndrome Awareness Day, and the SMS Foundation UK are also …
Bright Stars Shining a Light – A Video about living with SMS
The final film in our series! Bright Stars Shining a Light is a video about living with someone with …
Sunlight & Nightshade – A Video About SMS Behaviours
Sunlight & Nightshade is a video about some of the behaviours associated with Smith-Magenis …
Sweet Dreams & Survival – A Video about SMS Sleep
We are delighted to release the third film in our series. Sweet Dreams & Survival is a video …
That Defining Moment – A Video about Diagnosis
In the lead up to the international SMS awareness day (17th November), each week during …
A huge “Thank You” to our Jeans for Genes fundraisers
We would like to say a huge “Thank You” to all those that helped to support last weeks …
Mum speaks of son’s genetic disorder for Jeans for Genes Day
Joanne Martland and her son Louie are currently featuring in local newspaper, Wigan Today, to help …
The Marlborough family of Lily Stevenson have been chosen to front a campaign for national charity Jeans for Genes
A Wiltshire family with a child with a rare genetic disorder have been chosen as the face for the …
Video star Riley helps make people aware of syndrome
A BOGNOR REGIS family of a little boy with a rare genetic disorder has been chosen to front a …
The Story Behind the New SMS Foundation Logo
Let me explain Smith-Magenis Syndrome (SMS) through our logo; the Sun, Moon and Stars. The sun and …
SMS Trustees Working with Enable Scoop Charity Award
A huge congratulations to our very own trustees Nigel Over and Hazel Wotherspoon, part of a …
Cerebra Sleep Conference – Tackling Sleep Disturbances in Children with a Learning Disability
Our one day conference on sleep in children with brain conditions will disseminate the findings of …
Newly Updated SMS Booklet Published
A big thank you to Capital Document Solutions in Edinburgh for printing of copies of the SMS Booklet …
Dates for SMS Conference 2017 Announced
Following the success of our last conference in 2015, we shall once again be returning to the St …