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SMS Foundation UK

Supporting SMS families for a positive future

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We are a small charity that supports families living with Smith-Magenis syndrome (SMS)

Never feel isolated or alone. Call our helpline and leave a message: 0300 101 0034 (we aim to respond to messages within 48 hours).

Newly Diagnosed?

Leeann Stevenson

Natasha Craven

The SMS Foundation introduces Natasha Craven as our Research and Admin Assistant

Nigel Over winner of 'Terrific Trustee' at SCVO Charity Awards 2020

Nigel Over wins the ‘Terrific Trustee’ category at SCVO Charity Awards 2020

presentation cover

UK Demographics Study

Garden visit with Mum and Dad

SMS family face continued distress due to Covid-19 restrictions in care home

SMS distance aware shield

Be Distance Aware Shield

Yorkshire Three Peaks raises over £10k

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Connecting Families – Regional Representatives

Nigel Over working for the SMS Foundation

Nigel Over ‘Terrific Trustee’ finalist in SCVO Awards

Grace Sutton

Yorkshire Three Peaks Challenge

Lily Stevenson on her adapted tricycle

Five top tips to help maintain wellbeing during lockdown

Keele University and SMS Foundation logos

SMS Demographic Profile Study is launched

Picnic YouTube screenshot

Sunset, Moonlight and Sunrise – Teddy Bear’s Picnic

newsletter snippet early summer 2020

Early summer newsletter

The 2.6 Challenge

The 2.6 Challenge

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Songs Make Smiles Concert

SMS Bear Hug and Be Hugged badge

Launch of #SMSBearHugandBeHugged Campaign

Spring Newsletter featured image

Our Spring 2020 Newsletter

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Emergency hospital documents for download

Helen Hargrave - Fundraising Manager

The Smith-Magenis Syndrome (SMS) Foundation UK introduces Helen Hargrave as our Fundraising Manager

Information and Communications Manager Leeann Stevenson

Information and Communications Manager Announced for Smith-Magenis Syndrome (SMS) Foundation UK

Nigel Over, CEO Smith-Magenis Syndrome Foundation UK

CEO Announced for The Smith-Magenis Syndrome (SMS) Foundation UK

Registered CIO Charity Certificate

Charity Commission approval for CIO

Songs Make Smiles concert banner

Ciara Harvie becomes Charity Ambassador For SMS Foundation

New SMS Logo

Smith-Magenis Syndrome Foundation UK – EGM Notice

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SMS Foundation UK logo

Never feel isolated or alone. Call our helpline: 0300 101 0034

Please note: This is an answer phone service that will alert us as soon as a message is left. A member of the team will call you back as soon as possible – we aim to respond to messages within 48 hours.

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Become a Member of The SMS Foundation UK

Connect with SMS families in your region and be the first to receive updates on any social meetings, conferences, and fundraising events going on!

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Registered UK Charity (CIO) 1186647

Scottish Charity (SCIO) SC050921

Registered with the Fundraising Regulator

Copyright © 2021 Smith-Magenis Syndrome (SMS) Foundation UK CIO · Registered Charity Address: 61 High Street, Pewsey, Wiltshire SN9 5AF  
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