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SMS Foundation UK logo

SMS Foundation UK

Supporting SMS families for a positive future

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We are a small charity that supports families living with Smith-Magenis syndrome (SMS)

Never feel isolated or alone. Call our helpline and leave a message: 0300 101 0034 (we aim to respond to messages within 48 hours).

Newly Diagnosed?

Leeann Stevenson

Ann Smith announcing Alex Jowitt award

Alex Jowitt Award 2022

SMS Logo

Introducing six new intern placements for 2022

A brief summary of The SMS Bright Futures 2022 Conference

Alex Jowitt Award

The Alex Jowitt Award, nominations are now open!

person filling out a survey

Education Survey for Primary Carers in the UK

Are you considering adopting a child with Smith-Magenis syndrome?

OJRD logo

Caregivers’ experience of sleep management in SMS: research study published on Orphanet Journal of Rare Diseases

genetic disorders charity logos

Charities write a letter to Dr. Liam Fox over concerns about Down Syndrome Bill

The SMS Foundation AGM 2019

Notification of Annual General Meeting

community drop in zoom chat

Celebrating International SMS Awareness Day

Newsletter Summer 2021

Stay Awake Challenge - woman awake in bed

The SMS Stay Awake Challenge is back!

Fulfilling Futures logo

Fulfilling Futures – We need your help

Teddy Survey

Teddy Bears’ Picnic Feedback – Survey closes on 16th May

Teddy bears picnic image

Teddy Bears’ Picnic – schedule for the weekend

Genny Bear packing boxes

300 picnic boxes make their way to UK SMS members

Easter Card and Invitations sent to UK SMS Members

This week’s community Zoom drop-in chat with Jayne Dainty of SOS Care Services

SMS conference

SMS Foundation UK Conference Cancelled for 2021

snapshot of December newsletter

December Newsletter

NUE nomination

Natasha Craven Shortlisted for ‘Best Student Contribution’ to a Small to Medium-sized Employer award!

Announcement of AGM

conference 2021 announcement

Conference 2021 Announcement

Murrays

Win a loan of a Safety Sleeper for 2 weeks

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SMS Foundation UK logo

Never feel isolated or alone. Call our helpline: 0300 101 0034

Please note: This is an answer phone service that will alert us as soon as a message is left. A member of the team will call you back as soon as possible – we aim to respond to messages within 48 hours.

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Become a Member of The SMS Foundation UK

Connect with SMS families in your region and be the first to receive updates on any social meetings, conferences, and fundraising events going on!

Family & Carer Membership
Professional Membership

Registered UK Charity (CIO) 1186647

Scottish Charity (SCIO) SC050921

Registered with the Fundraising Regulator

Copyright © 2021 Smith-Magenis Syndrome (SMS) Foundation UK CIO · Registered Charity Address: 61 High Street, Pewsey, Wiltshire SN9 5AF  
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