Week 4 and we are delighted to release the fourth film in our series. Sunlight & Nightshade is a video about some of the behaviours associated with Smith-Magenis syndrome, and in this film we ask a number of different families the following questions:
- Can you tell me the best two things about living with or caring for someone with SMS?
- Can you tell me the two most challenging things about living with or caring for someone with SMS?
This film focuses on the behavioural aspects of SMS, in particular the striking contrast between the loving and endearing personality and the challenging and difficult side – sunlight and nightshade! The video shares the highs and lows of living with someone with Smith-Magenis syndrome, but what is truly wonderful is watching the pure unconditional love as each family describes their SMS child (or sibling).
The SMS Foundation would like to thank all those who helped to make these films, in particular the families willing to provide an insight into their experiences of living with SMS, including: Bernie Ogilvie, Lynn Archer and Emma Monks, Anna and Matt Ferreira, Tony and Rachel Stokes, Heather and Jon Gunnell, Dawn and Richard Arnold, Sue Rudderham and Roy Clarke, Diane Erth, Christine and Tim Dudley, and Kelly Heeley.
Finally, an extra special “Thank You” to Salli Hunt for coordinating the films (as well as featuring in them) and the super talented videographer Stephen Crawford.