Hi i am Rachel Mockford this will be my first half marathon, that said i wanted to make it extra special for two reasons, one for myself and two for a very special little boy called Riley Pearson who happens to be a member of my family. Riley has Smith-Magenis Syndrome (SMS). Riley is one […]
Below are some of the inspiring individual fundraising events organised by friends, families and members supporting the Smith-Magenis Syndrome Foundation.
Your Fundraising Events
We are a small group of dads that have come together to support each other. This is due to our children and young adults living with Smith-Magenis Syndrome. We support each other in a number of ways but mainly by just chatting and relating to life experiences, so we have decided to take up the […]
We are raising money for the Smith-Magenis Foundation a charity that helps children of all ages and families living with condition. The foundation is a small charity that rely solely on fundraising and donations, so every penny counts. Sue says… “Toby was born with a rare chromosome disorder called Smith-Magenis Syndrome (SMS). He was diagnosed […]
Julia Russett, based in Wiltshire, ran the Bath half marathon in March this year. She now plans to extend her fundraising efforts and run the Swindon half marathon in September. Julia Says… I am running the Bath Half Marathon for two reasons, one well I need an excuse to get fit and well unless I […]