Hazel Wotherspoon – Chair Person
Hazel Wotherspoon is a mum of 4 young adults, 3 of whom have significant disabilities; the 22 year old having SMS.
Hazel worked as a physio, mainly paediatrics for 27 years before leaving work to become a full time carer. She has been involved with the Foundation many years first as a member and later as a trustee. Hazel strives to increase awareness and understanding of SMS , especially amongst professionals. Her prime aim is to support families in any way they need.
Nigel Over – Trustee
Nigel has been a trustee of the foundation since 2012. He is also chairman of the Council of ENABLE Scotland where he has actively campaigns on issues affecting people with learning disabilities, particularly focusing on children and education. Previously he sat on the Board of ENABLE Scotland overseeing the running of learning disability services as well as their charity and campaigning activities.
Additional charity work includes REMAP which provides bespoke solutions to enable people with disabilities to enjoy life to the full, The Signalong Group where he initiated “The Signalong Companion to the Oxford Reading Tree”, as well as serving on West Lothian’s educational placement appeals committee and tribunal panels. In 2008 he was presented with the Sir Walter Bodmer National Volunteer of the Year Award.
Emma Riddell – Trustee
Emma is a mother of three children, Harry who is aged 15, Grace (SMS) who is 10 and Charlie who is 7 years old, Emma is currently a fulltime Mum and lives with her husband Mark in Birmingham. She is passionate about raising awareness and fundraising for the foundation.
Leeann Stevenson – Trustee
Leeann is the mother to three children, Lily (SMS) who was born in 2007 and diagnosed in 2010, William and Teddy. With a degree and background in design, Leeann currently balances working part-time as a web designer and looking after her three children in Marlborough, Wiltshire.
Leeann has been a trustee to the SMS Foundation for 5 years, and during that time she has used her design skills to breathe new life into the charity branding and logo. A few years ago she managed the migration of the current website from a dysfunctional static website. She is currently working on a new website, due to be launched in the summer of 2017.
Other projects include: the design and publication of the latest edition of the SMS Guidelines booklet (re-written and edited by Dr Lucy Elmer), a range of branded merchandising products for the SMS Foundation, the creation and publication of the Sponsor My Smile fundraising campaign (http://smile.smith-magenis.org), and the design/build of the conference website.
She is also actively involved in helping to organise this years 2017 conference and was also involved in the organization of the 2015 and 2013 conferences.
Nick Hunt – Trustee
Nick Hunt is an IT consultant and father of a boy and girl. Samuel his eldest child has SMS. Nick is highly motivated and looking forward to helping the foundation raise awareness and providing access to information and resources.
Mick Pearson – Board Member
Mick is new to the board and will hopefully bring a fresh incentive and new ideas. He is very proactive within the foundation giving support and life experiences to families new and old.
Mick’s drive is to support families newly diagnosed with Smith-Magenis Syndrome and seeks to connect with them in his unique way.
Mick also supports dads living with Smith-Magenis Syndrome and assists in helping them to connect with each other, he is also keen to promote awareness and fundraising for children and adults with Smith-Magenis Syndrome. His son Riley was born in 2011 and diagnosed in 2014